I had the rough experience of sitting idly by while life unfolded around me. It didn't get me very far. After a period of anxiety it was clear that things would have to change. So began the long journey of creating my life from that point. Inspiration has come to me from many different sources and now I am stronger and actively making this life mine.
Tuesday, 7 October 2025
Realisation Bombs
One of the most challenging issues with being late diagnosed, and lets face it I am almost a geriatric diagnosis, is the sudden realisation that something (or more likely realisations) that happened did so as a direct result of neurodivergence. This realisation can be sudden and prompted by other occurrences, or even tangential thinking.
The current issue was brought to my attention by reading that someone else, found that doing a course when working was too much.
Que Lightening bolt.
After I finished my nurse training, it was generally expected that you undertake further formal study. Most of these courses were at degree level and would have helped me to achieve a degree in some nursing subject. This was pushed quite a lot. Typically of me, after qualifying as an RN, I started a serious relationship and before the second anniversary of qualifying we had a baby on the way.
I had not been around many babies growing up and I had beaten my sibling to the event. To say that I was apprehensive about the impending birth is an understatement. The pressure to continue with my academic studies was growing, and as I was unable to get on the much coveted 118 Teaching and Mentoring course, I decided to do the course I was really interested in. The 928 Diabetes course.
I thoroughly enjoyed the course, and learned a lot and reconnected with one of my first mentors when I was studying. All went well, I did amazingly well in the course work and that left a final presentation.
The Presentation was explaining the ideas behind a self-designed leaflet, including all of the supporting information and research. I had an idea, it was off the wall, but had a solid basis in research. The day before the presentation the companion of doom became overwhelming. "It's, a stupid idea. Not only that it is silly. You will fail. What's the point?"
I panicked, called in sick, there was no way I could present this in front of my peers. I would fail and be humiliated. RSD in full blown glory, there protecting me from the inevitable. I remember the anxiety, the fear, the shame. Eventually I did give the presentation in front of the tutors and passed the course.
It was the one and only time I completed an academic work after qualification. The overwhelm, anxiety, fear, and failure of self-esteem are all recurrent themes, added to by the arrival of more children and my inability to manage the time at home. Full time work and children is a lot. Today even in my medicated state I think that I would struggle to do this and all of my children are over 18 now. There is however, our grandchild that keeps us on our toes.
This realisation occurred yesterday, it derailed my morning. Rejection sensitivity pointing gleefully - it was me.
Oh well carrying on.
Be well everyone.
Monday, 6 October 2025
My Journey on the ADHD drugs - so far
Titration for ADHD meds came to an end a while ago. I am now settled on Equasym 50mg daily which has fast and slow release elements to it, with a 5mg Medikinet standard release top up in the afternoon. This latter for the energy crash I was experiencing between 3 and 4 pm. During the titration due to shortages with medication I was given a similar Long-acting medication with a similar chemical profile, namely Medikinet XR 50mg. As time went on, I realised that the latter medication heightened my anxiety state and upon looking into the composition of the medication it has a slightly higher dose of immediate action medication than the Equasym.
The easiest benefit to describe is from the first dose an immediate rise in my motivation to get things done. It was amazing, and it took a while for me to realise, that the little voice that has always been in my head feeding me the line, "Why are you bothering? What's the point? You don't really want to do this." was now gone. Doing even the most boring tasks was now possible.
The worst side effect is my heightened awareness, of everything. Visual, audible and awareness that I am experiencing negative emotions. This last item is a revelation. Before, I have basically been blundering around and only really being aware of a deepening state of emotional imbalance by sudden explosions of anger or crippling depression. Now I am aware of the toll that certain situations take on my mental health.
Noise. I know that I have always struggled with crowds of people. The noise generated by different converstaions, has always been impossible to filter out. The situation becomes overwhelming, and in the past I have withdrawn into myself, becoming steadily less interactive. I have also been known to physically remove myself from social situations, just popping outside for a breather never worked. I now know why.
Buses. In the past, I have been able to travel by bus without thinking about it. However, when I reflect upon this, I would prefer to walk. I always thought that this was due to various reasons. The bus not turning up, having to wait for an extended period for a bus. Really, now I can put my finger on it: Social anxiety due to the overwhelming noise on even a partially full bus. I noticed the same issue in the GP surgery; the acoustics are awful, and even one moderately loud person becomes too much. I recently had to make a journey with my wife to an appointment. I thought I would be OK as I was with someone. It took me three days to recover, spending a lot of time in a highly anxious state.
Visual. This is also true of visual stimuli. Too many visual things happening can become overwhelming. Fortunately this doesn't have the same long term effect.
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